Vote for these wonderful children's health and education projects and charities in the Pepsi Refresh Contest and make a difference in the lives of kids all over the United States.
Because every child deserves to live a long and healthy life.
Thank you to all our voters, supporters, posters and everyone who cares about these children!!!
Please keep those votes coming, the children need your support!!!!! A couple of our charities are in the winning zone and some just a few spots from winning!
CHERUBS - $25,000 to Provide financial assistance for hospital travel expenses to families affected by CDH (Congenital Diaphragmatic Hernia), a rare and often deadly birth defect that affects over 60,000 babies every year. Text 101202 to Pepsi (73774)
Congenital CMV Foundation - help end the leading cause of childhood disability in America
oals
to raise awareness about CMV, the most common infection at birth!
to contribute financially in support of CMV vaccine research
to produce a PSA for national distribution in the television markets
to help support our annual event for families w/ CMV affected children
Overview
Our Foundation is an all volunteer 501c3 comprised of parents of CMV-affected children and leading CMV researchers & clinicians. The first nonprofit established to raise awareness of congenital CMV, we're also the only nonprofit dedicated to financially supporting CMV vaccine research. This Pepsi grant will allow us to make a significant contribution to CMV vaccine research & to produce a PSA for national TV broadcast to raise awareness. A small portion of the grant will also help provide stipends for CMV-affected families to attend our annual conference for support, education & community building. CMV is a common virus that if transmitted to the developing fetus, it attacks the brain, causing terrible damage. CMV is the most common infection at birth! More common than Down Syndrome, EVERY HOUR A CHILD IS DISABLED BY CMV! CMV can cause: death, seizures, mental retardation, cerebral palsy, deafness, blindness & more.
How will the 250K be Used?
Budget Notes: The budget does not cover travel expenses to promote the PSA or to organize and attend various public awareness events. These travel costs are covered via private grants/donations.
$ 125,000
CMV Vaccine research grant award
$ 95,000
Produce & air TV and radio PSA's for national distribution
$ 10,000
Printing of Public Awareness documents such as CMV info pamphlets, etc
$ 20,000
Stipends for CMV-affected families to attend our annual support event
To provide funding to increase therapists for Early Intervention
To provide funding to families with young children with autism
Overview
Ella’s Hope Foundation’s mission is to promote autism awareness and support families affected by autism spectrum disorders. We are committed to funding families, programs and organizations that provide early intervention services and therapies, family support, education, advocacy and opportunities with the purpose of improving the quality of life for individuals with autism and their families. We offer support to organizations that provide services for children with autism and to organizations that conduct research on the causes and effects of autism.
How will the 25K be Used?
$ 10,000
Start-up costs and putting on our first major fundraiser for families
$ 5,000
Money to the Thompson Center for Autism for EIBI therapy
$ 10,000
Scholarship funds for families to help with therapy costs
Picture Communication - Help students with Autism communicate.
Overview
Imagine being a child without the ability to communicate your most basic wants and needs. This is a daily struggle for children with Autism. As a speech pathologist, I work in an inner city Boston School with children with Autism. I provide students with the communication tools necessary to interact and function in school. Every student requires some sort of visual to help them communicate. Some need low tech communication notebooks with pictures of items and actions they may require throughout their day. Others need pictures which help them to speak in complete sentences. Some of my students require a computer equipped with dynamic interactive screens to enhance their communication skills. All of my students require videos and pictures to help them understand the world around them. These communication aids require time to create, but most importantly they require equipment, materials and supplies unaffordable in my school.
How will the 5K be Used?
$ 2,000
HP touchscreen laptop computer
$ 1,924
Ink for a color printer
$ 240
Video camera
$ 140
Laminating pouches
$ 96
Velcro
$ 80
Colored paper
Vote from your mobile phone
Text* 100037 to Pepsi (73774) *Standard text messaging rates apply.
National Inclusion Project, Inc - Help kids with disabilities experience life with their peers.
Overview
The National Inclusion Project gives children with disabilities the opportunity to experience all life has to offer. Through Let's ALL Play children with disabilities have the same experiences as those without by participating together in recreational activities such as swimming, arts and crafts, community service, physical fitness and more. Children of all abilities participating in Let's ALL Play have seen dramatic development in motor skills as well as improvement in social skills, self-esteem, compassion, and understanding.
The Project will bring Let's ALL Play to community programs nationwide by providing training on best practice inclusion techniques and scholarships so that no child is left on the sidelines. This training will expand the capacity of programs to offer inclusive experiences for generations to come.
A mother said, "At camp, my son does not have Down Syndrome, wear hearing aids, or have difficulty with his speech. He is simply a camper."
How will the 50K be Used?
Budget Notes: Ongoing consulting services to staff will be provided by the National Inclusion Project staff.
$ 36,000
trains staff across the country on best practice inclusion techniques.
$ 3,400
provides training supplies.
$ 10,600
gives scholarships to kids who are unable to afford programs.
CHERUBS - Provide financial assistance to families affected by CDH.
Goals
To financially assist families affected by CDH
To provide gas cards to help with travel expenses
To provide restaurant gift cards to help with expenses
To provide grocery gift cards to help with expenses
To help with airline ticket and lodging costs when needed
Overview
The CDH Family Assistance Fund helps families with the expenses incurred traveling for medical care for very high-risk pregnancies and critically ill newborns. Often families have to travel 100's of miles to hospitals that are equipped to handle babies born with Congenital Diaphragmatic Hernia (CDH) and that provide ECMO, a heart and lung bypass machine, if needed. Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. 50% of babies born with CDH do not survive. The cause of CDH is not known, but it is as common as Cystic Fibrosis and Spina Bifida. Every 10 minutes a baby is born with CDH - adding up to over half a million babies since 2000. The hospital stay for a severely affected baby can be as long as 1 year. With the medical bills and emotional stress that these families go through, we want to offer a little help with making travel easier and affordable.
How will the 25K be Used?
Budget Notes: Most pediatric hospitals are affiliated with the Ronald McDonald House, which provides lodging for many of our families. Our request for hotel gift cards are for those traveling long distances overnight to reach a hospital or those rare times when a Ronald McDonald House does not have an empty room.
Though CHERUBS has just 1 project in this alliance, they have 4 more in this month's contest. Their goal is to focus on 1 at a time to help the babies with all 5 needed grants so if you have extra votes please vote for one of these projects to help keep them in the top 100 so they will roll over each month.
$250k CDH RESEARCH - text message 102542 send to 73774 (pepsi)
$50k Awareness - text 102365 to 73774
$25k Hospital Kits - text 101211 to 73774
$25k Financial Assistance - text 101202 to 73774
$25k Care Packages - text 102123 to 73774 Or click through each one below:
Knowing the devestating impact these genetic disorders can have on a child if left untreated, both neurologically and physically and what it can do to a family, education and early intervention is key. BBAF would use funds to provide the much needed formula that health care insurance often does not cover for special needs children to ensure a healthy quality of life. Without the formula a child could suffer from a metabolic crisis causing severe brain damage, cerebral palsy, dystonia, coma or death. The funds would also allow the foundation to better educate new moms/families about the importance of Comprehensive newborn screening.
How will the 50K be Used?
Budget Notes: Any other money would go to help family with any other necessaties related to the care of their child. Unpaid medical bills, supplements that aren't covered by insurance, food, electricty and heating costs. Must be a NECESSITY and families must provide proof of the need (the bill, paystubs, etc.)
$ 10,000
Public Service Announcement
$ 10,000
Formula Support
$ 5,000
Literature to Distribute
Vote from your mobile phone
Text* 103868 to Pepsi (73774) *Standard text messaging rates apply.
The Leukemia & Lymphoma Society® (LLS) - Refresh the Dream—Rockin' Against Leukemia: Find a Cure by 2015!
Goals
Refresh the dream to find a cure for blood cancers by 2015.
Motivate America's youth to actively contribute toward finding a cure.
Provide a fun and innovative platform for students to participate.
Train youth leaders in all aspects of producing a quality live event.
Encourage youth to lead the way by being compassionate contributors.
Overview
Rockin’ Against Leukemia (RAL) is a pilot School & Youth program initially reaching out to over a million youth. High school and college students form their own Guitar Hero bands to compete in a Battle of the Bands Tournament at their schools. Funds are raised through ticket and program ad sales. Winners will receive their own GHWT bundle and advance to the RAL Battle of the Bands Championship! The championship will feature A-list celebrity judges, audience voting and great prizes that the expected 3,000 attending will have a chance to win.
Upon a successful RAL campaign in the Greater Los Angeles Area, the intent of LLS is to release this program nationally.
The RAL Honored Hero is 8-year-old Kaitlyn Walton who was diagnosed with acute lymphoblastic leukemia at the age of two. Kaitlyn successfully completed two years of cancer treatments. She is now a happy, healthy kid who enjoys karate, art and spending time with her animals and loved ones.
How will the 50K be Used?
Budget Notes: Activision has kindly donated the Guitar Hero World Tour bundles as prizes for our winning participants. We will be soliciting in-kind donations from other like-minded companies for our RAL Championship Event prizes & give-aways.
$ 22,614
Crew (Parking, Security, Campaign Director & Campaign Assistant)
$ 1,800
Production Staff
$ 5,000
Campaign Materials (Design & Production)
$ 1,200
Postage/Mailing
$ 2,630
Transportation (includes celebrity transport & school presentations
$ 6,000
Venue
$ 2,500
Set Construction & Dressing
$ 960
Storage of RAL GHWT Bundles & Equipment
$ 1,400
Food/Refreshments (Bands/Crew/Volunteers - est. 200)
$ 1,500
Equipment Rental (FX lights, sound)
$ 1,500
Raffle/Door Prizes
$ 2,896
Contingency (6%)
Vote from your mobile phone
Text* 103906 to Pepsi (73774) *Standard text messaging rates apply.
Alternating Hemiplegia of Childhood Foundation - Find a path to the cure for Alternating Hemiplegia of Childhood (AHC).
Goals
To use advanced genetic testing on target group of AHC patients
To use results to effectively screen larger population of AHC patients
To find the root cause of AHC in hopes of a cure
Overview
The project seeks to identify the genetic cause for a rare and devastating neurologic disorder in children, Alternating Hemiplegia of Childhood. To accomplish this, we need to take advantage of the most advanced genetic technologies available. We have amassed the largest database of children with AHC. No one has yet been successful in identifying any common genetic mutation in AHC patients. Our project plan is simple: we will first take a DNA sample of a target group of AHC patients, use the most advanced genetic technology available, including whole genome sequencing, and screen for any shared genetic mutation. Next, we will take the mutation identified in our pilot group and then screen the remaining children in our database. Leveraging this methodolgy in the first phase of our trial will make the screening of the remaining patients more efficient and cost-effective. Ultimately, in finding the cause of AHC, we hope to take the first step towards a cure.
How will the 250K be Used?
$ 79,634
Personnel
$ 166,400
Labs and procedures
$ 3,000
Patient costs
Vote from your mobile phone
Text* 104112 to Pepsi (73774) *Standard text messaging rates apply.
This blog was created to promote children's health and education projects in the Pepsi Refresh contest for November. Our goal is to help the charities and individuals who have projects in for this month by voting together for a common cause - to help the children.
If you would like to be listed, please e-mail us at research@cdhsupport.org
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