Meet Congenital CMV Foundation - help end the leading cause of childhood disability in America

Congenital CMV Foundation - help end the leading cause of childhood disability in America

oals

• to raise awareness about CMV, the most common infection at birth!
• to contribute financially in support of CMV vaccine research
• to produce a PSA for national distribution in the television markets
• to help support our annual event for families w/ CMV affected children

 

Overview

Our Foundation is an all volunteer 501c3 comprised of parents of CMV-affected children and leading CMV researchers & clinicians. The first nonprofit established to raise awareness of congenital CMV, we're also the only nonprofit dedicated to financially supporting CMV vaccine research. This Pepsi grant will allow us to make a significant contribution to CMV vaccine research & to produce a PSA for national TV broadcast to raise awareness. A small portion of the grant will also help provide stipends for CMV-affected families to attend our annual conference for support, education & community building. CMV is a common virus that if transmitted to the developing fetus, it attacks the brain, causing terrible damage. CMV is the most common infection at birth! More common than Down Syndrome, EVERY HOUR A CHILD IS DISABLED BY CMV! CMV can cause: death, seizures, mental retardation, cerebral palsy, deafness, blindness & more.

How will the 250K be Used?
Budget Notes: The budget does not cover travel expenses to promote the PSA or to organize and attend various public awareness events. These travel costs are covered via private grants/donations.
$ 125,000	CMV Vaccine research grant award
$ 95,000	Produce & air TV and radio PSA's for national distribution
$ 10,000	Printing of Public Awareness documents such as CMV info pamphlets, etc
$ 20,000	Stipends for CMV-affected families to attend our annual support event

Vote from your mobile phone

Text* 101692 to Pepsi (73774)

*Standard text messaging rates apply.

Meet CHERUBS - Provide financial assistance to families affected by CDH.

CHERUBS - Provide financial assistance to families affected by CDH.

Goals

• To financially assist families affected by CDH
• To provide gas cards to help with travel expenses
• To provide restaurant gift cards to help with expenses
• To provide grocery gift cards to help with expenses
• To help with airline ticket and lodging costs when needed

 

Overview

The CDH Family Assistance Fund helps families with the expenses incurred traveling for medical care for very high-risk pregnancies and critically ill newborns. Often families have to travel 100's of miles to hospitals that are equipped to handle babies born with Congenital Diaphragmatic Hernia (CDH) and that provide ECMO, a heart and lung bypass machine, if needed. Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. 50% of babies born with CDH do not survive.  The cause of CDH is not known, but it is as common as Cystic Fibrosis and Spina Bifida. Every 10 minutes a baby is born with CDH - adding up to over half a million babies since 2000.   The hospital stay for a severely affected baby can be as long as 1 year. With the medical bills and emotional stress that these families go through, we want to offer a little help with making travel easier and affordable.

How will the 25K be Used?
Budget Notes: Most pediatric hospitals are affiliated with the Ronald McDonald House, which provides lodging for many of our families. Our request for hotel gift cards are for those traveling long distances overnight to reach a hospital or those rare times when a Ronald McDonald House does not have an empty room.

Though CHERUBS  has just 1 project in this alliance, they have 4 more in this month's contest.   Their goal is to focus on 1 at a time to help the babies with all 5 needed grants so if you have extra votes please vote for one of these projects to help keep them in the top 100 so they will roll over each month.

Click here to vote for all 5 projects at once!

$250k CDH RESEARCH - text message 102542 send to 73774 (pepsi)
$50k Awareness - text 102365 to 73774
$25k Hospital Kits - text 101211 to 73774
$25k Financial Assistance - text 101202 to 73774
$25k Care Packages - text 102123 to 73774

Or click through each one below:

Meet the Bailey Baio Angel Foundation - Expanded Newborn Screening Education & Assist Affected Families

Bailey Baio Angel Foundation - Expanded Newborn Screening Education & Assist Affected Families

 

Goals

• Raise awareness for Expanded Newborn Screening
• Provide educational materials
• Support for families whose insurance does not cover metabolic formula

Gallery See all videos & photos

 

 

Overview

Knowing the devestating impact these genetic disorders can have on a child if left untreated, both neurologically and physically and what it can do to a family, education and early intervention is key. BBAF would use funds to provide the much needed formula that health care insurance often does not cover for special needs children to ensure a healthy quality of life. Without the formula a child could suffer from a metabolic crisis causing severe brain damage, cerebral palsy, dystonia, coma or death. The funds would also allow the foundation to better educate new moms/families about the importance of Comprehensive newborn screening.

How will the 50K be Used?
Budget Notes: Any other money would go to help family with any other necessaties related to the care of their child. Unpaid medical bills, supplements that aren't covered by insurance, food, electricty and heating costs. Must be a NECESSITY and families must provide proof of the need (the bill, paystubs, etc.)
$ 10,000	Public Service Announcement
$ 10,000	Formula Support
$ 5,000	Literature to Distribute

Vote from your mobile phone

Text* 103868 to Pepsi (73774)
*Standard text messaging rates apply.