Bailey Baio Angel Foundation - Expanded Newborn Screening Education & Assist Affected Families
Goals
- Raise awareness for Expanded Newborn Screening
- Provide educational materials
- Support for families whose insurance does not cover metabolic formula
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Overview
Knowing the devestating impact these genetic disorders can have on a child if left untreated, both neurologically and physically and what it can do to a family, education and early intervention is key. BBAF would use funds to provide the much needed formula that health care insurance often does not cover for special needs children to ensure a healthy quality of life. Without the formula a child could suffer from a metabolic crisis causing severe brain damage, cerebral palsy, dystonia, coma or death. The funds would also allow the foundation to better educate new moms/families about the importance of Comprehensive newborn screening.
How will the 50K be Used? | |
| Budget Notes: Any other money would go to help family with any other necessaties related to the care of their child. Unpaid medical bills, supplements that aren't covered by insurance, food, electricty and heating costs. Must be a NECESSITY and families must provide proof of the need (the bill, paystubs, etc.) | |
| $ 10,000 | Public Service Announcement |
| $ 10,000 | Formula Support |
| $ 5,000 | Literature to Distribute |
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