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and make a difference in the lives of kids all over the United States.

Because every child deserves to live a long and healthy life.




Showing posts with label Alternating Hemiplegia. Show all posts
Showing posts with label Alternating Hemiplegia. Show all posts

Wednesday, December 1, 2010

2 November Winners!!!!!

We have 2 winners for Novembers!!!!!  Thank you so much for your votes and support!   Please keep it coming in December!

A HUGE CONGRATULATIONS to:


WTG everyone!!!!!!!!   Helping the kids is what it's all about!

Tuesday, November 30, 2010

Last Day to Vote for November!

Voting ends at midnight EST so get those votes in!  This is a very close race so every vote counts!!!

Today's ranking:


  • CHERUBS -  #32 for $25,000.  Text 101202 to Pepsi (73774)
  • Ella's Hope - #12 for $25,000 - 2 spots from the win!   Text 100288 to Pepsi (73774)
  • Rockin' Against Leukemia #124 in $50,000. - must get them to top 100 to roll over for December!   Text 103906 to Pepsi (73774)

Monday, November 29, 2010

Today's Ranking - November 29

Today's ranking:


  • CHERUBS -  #32 for $25,000.  Text 101202 to Pepsi (73774)
  • Ella's Hope - #12 for $25,000.  Text 100288 to Pepsi (73774)


Standard text messaging charges by your cell phone provider apply.  Pepsi does not charge additionally.

Friday, November 19, 2010

November 19th Rankings

Today's ranking:


  • CHERUBS -  #36 for $25,000 (moved up 1 rank).  Text 101202 to Pepsi (73774)
  • Ella's Hope - #13 for $25,000 (holding place).  Text 100288 to Pepsi (73774)


Standard text messaging charges by your cell phone provider apply.  Pepsi does not charge additionally.

Saturday, November 13, 2010

Vote by Text!



  • CHERUBS -  Text 101202 to Pepsi (73774)


Standard text messaging charges by your cell phone provider apply.  Pepsi does not charge additionally.

Updated Voting List


  • CHERUBS - $25,000 to Provide financial assistance for hospital travel expenses to families affected by CDH (Congenital Diaphragmatic Hernia), a rare and often deadly birth defect that affects over 60,000 babies every year.  Text 101202 to Pepsi (73774)

    • Rockin' Against Leukemia - $50,000 Refresh the Dream - Rockin' Against Leukemia: Find a Cure by 2015!  Text 103906 to Pepsi (73774)
    •  
    • Ella's Hope - $25,000 to the early intervention of Autism.  Text 100288 to Pepsi (73774)
    • Congenital CMV Foundation - $250,000 to help end the leading cause of childhood disability in America.  Text 101692 to Pepsi (73774)
      • SSBTR - $5,000 to Students Supporting Brain Tumor Research.  Text 102749 to Pepsi (73774) 

      Monday, November 8, 2010

      Meet Alternating Hemiplegia of Childhood Foundation - Find a path to the cure for Alternating Hemiplegia of Childhood (AHC).

      Alternating Hemiplegia of Childhood Foundation - Find a path to the cure for Alternating Hemiplegia of Childhood (AHC).





      Goals

      • To use advanced genetic testing on target group of AHC patients
      • To use results to effectively screen larger population of AHC patients
      • To find the root cause of AHC in hopes of a cure

       

       Overview

      The project seeks to identify the genetic cause for a rare and devastating neurologic disorder in children, Alternating Hemiplegia of Childhood.  To accomplish this, we need to take advantage of the most advanced genetic technologies available.  We have amassed the largest database of children with AHC. No one has yet been successful in identifying any common genetic mutation in AHC patients.  Our project plan is simple: we will first take a DNA sample of a target group of AHC patients, use the most advanced genetic technology available, including whole genome sequencing, and screen for any shared genetic mutation.  Next, we will take the mutation identified in our pilot group and then screen the remaining children in our database.  Leveraging this methodolgy in the first phase of our trial will make the screening of the remaining patients more efficient and cost-effective. Ultimately, in finding the cause of AHC, we hope to take the first step towards a cure.

      How will the 250K be Used?

      $ 79,634 Personnel
      $ 166,400 Labs and procedures
      $ 3,000 Patient costs

      Vote from your mobile phone

      Text* 104112 to Pepsi (73774)
      *Standard text messaging rates apply.