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Saturday, November 13, 2010

Meet Congenital CMV Foundation - help end the leading cause of childhood disability in America

Congenital CMV Foundation - help end the leading cause of childhood disability in America






oals

  • to raise awareness about CMV, the most common infection at birth!
  • to contribute financially in support of CMV vaccine research
  • to produce a PSA for national distribution in the television markets
  • to help support our annual event for families w/ CMV affected children

Overview

Our Foundation is an all volunteer 501c3 comprised of parents of CMV-affected children and leading CMV researchers & clinicians. The first nonprofit established to raise awareness of congenital CMV, we're also the only nonprofit dedicated to financially supporting CMV vaccine research. This Pepsi grant will allow us to make a significant contribution to CMV vaccine research & to produce a PSA for national TV broadcast to raise awareness. A small portion of the grant will also help provide stipends for CMV-affected families to attend our annual conference for support, education & community building. CMV is a common virus that if transmitted to the developing fetus, it attacks the brain, causing terrible damage. CMV is the most common infection at birth! More common than Down Syndrome, EVERY HOUR A CHILD IS DISABLED BY CMV! CMV can cause: death, seizures, mental retardation, cerebral palsy, deafness, blindness & more.

How will the 250K be Used?

Budget Notes: The budget does not cover travel expenses to promote the PSA or to organize and attend various public awareness events. These travel costs are covered via private grants/donations.
$ 125,000 CMV Vaccine research grant award
$ 95,000 Produce & air TV and radio PSA's for national distribution
$ 10,000 Printing of Public Awareness documents such as CMV info pamphlets, etc
$ 20,000 Stipends for CMV-affected families to attend our annual support event

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